Imaging Fragile X

We are now seeking volunteers living in the UK with Fragile X Syndrome aged between 12 and 70 for a brain imaging study.

In this study we are using MRI brain scanning to examine both the structure and function of the brains of individuals with Fragile X Syndrome (currently only full mutation carriers).  We are trying to describe these in as much detail as possible, so as to have a baseline from which we can compare changes over time and with/without medications.  Particularly, we are interested in which regions of the brain are most active when looking at other people’s emotions.

The scan itself lasts less than 10 minutes, and individuals would be in the scanner for less than 15 minutes in total.  Because not many people have had a scan before, we encourage practice on our pretend scanners beforehand.  We also have recordings of the noises the scanner makes so there aren’t any surprises in the scanner.

The study is based in Edinburgh, Scotland and we have money to cover travel expenses.

More information

Download our information leaflet here

This study has been made possible by a generous grant from the RS Macdonald Charitable Trust, to whom we are very grateful.

Take part

If you are interested in finding out more information, or in taking part please email or phone Andrew McKechanie at the contacts below:

email: andrew.mckechanie@ed.ac.uk

phone: 0131 537 6685

We look forward to hearing from you.

 

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