Fragile X UK/Patrick Wild Centre Family Day 2024
May 2nd, 2024On what felt like the warmest and brightest day of the year so far, a number of Patrick Wild Centre (PWC) and SIDB researchers and clinicians joined the latest Fragile X Society UK Family Day, co-hosted by the PWC and Fragile X Society.
Caregiver Perspectives Wanted on Future Genetic Therapies for Fragile X
May 1st, 2024We are keen to hear from you what your thoughts are on gene therapy and its potential use in Fragile X Syndrome (FXS). While various interventions to help people with FXS are available, there are currently no medicines or other therapies that target the underlying genetic change which causes the condition. Gene therapy represents a different therapeutic approach as it specifically targets the underlying genetic factors which lead to FXS. Early studies in laboratories have shown that gene therapy might …
Dates now available across the UK for our CHANGES SYNGAP1 study!
February 19th, 2024BOOK NOW! We have spaces available in York (9-10 March), Manchester (20-21 April), Luton (22-23 June) and Bristol (29-30 June).
