Join a Study

Advances in clinical research are impossible without the help of people who volunteer to take part in our projects. We are extremely grateful to those of you who have already taken part in our research, and we encourage anyone else who is interested to get in touch.

Browse our studies which are currently recruiting participants below.


Join Study Mask

Currently recruiting participants


Clinical trial of CBD gel for children and adolescents with fragile X syndrome.

CHANGES study – Behaviour and Physiology in SYNGAP1

Dates now available to be seen around UK - sign up now!

Fragile X Registry / eHub

The Fragile X Registry and eHub aim to collect detailed clinical information about fragile X syndrome, and those who carry

Join our contact database

Sign up to hear about news, events and research studies that you might be interested in. 

Make a Donation Today!

Heart Donation