We are very much looking forward to our 3rd SYNGAP1 family day in Edinburgh which is co-organised with SYNGAP1-UK. Families will have the opportunity to meet to meet other families affected by SYNGAP1 and learn from their experiences as well as hear from laboratory and clinical scientists working in the SYNGAP1 field.
For those who can bring their affected relative there will also be the opportunity to take part in our CHANGES study. This is being run by Sydni Weissgold, a PhD student who is partly funded by SYNGAP1-UK. The CHANGES study will look at how behaviour might change over time in people with SYNGAP1, especially anxiety and agitated behaviours, as well as identify some of the potential biological associations of these behaviours.
SYNGAP1 Family Day, Edinburgh, 2022.