Privacy Notice

This page explains how we store and use the information you have given us, and how you can unsubscribe from the PWC Friends List and the PWC Participants Database. You can find more information about the PWC Friends List and the PWC Participants Database on the Frequently Asked Questions page.

 

We are storing and using the information about you that you have provided when registering to the PWC Friends List and/or the PWC Participants Database. We are doing so because of our legitimate interests. The information will be used by the University of Edinburgh to communicate with you about news, events, opportunities, or fundraising appeals relevant to the Patrick Wild Centre. Our communications with you will vary depending on whether you have registered for the PWC Friends List, the PWC Participants Database, or both (more details below). We will hold the personal data you provided us until you choose to unsubscribe. You can unsubscribe at anytime (more details to unsubscribe are provided below).

 

The PWC Friends List is used to share news, events, or fundraising appeals from the Patrick Wild Centre, and only contains your name and email address. These personal details are gathered in the ‘mlist’ facility at the University of Edinburgh as our mailing system. The information you provide will be used by the administrator of the PWC Friends List to ensure we only communicate with you about news and events of interest to you, as listed above.

You can opt-out of the PWC Friends List at any time by either emailing us at patrick.wild.centre@ed.ac.uk (please write “UNSUBSCRIBE” in the subject of the email for faster processing, and indicate you wish to opt-out of the Friends List) or by clicking on the “Unsubscribe” link at the end of the newsletter.

 

The PWC Participants Database is used to advertise studies from the Patrick Wild Centre that are looking for participants. It contains the personal details that you have to provide when registering: your name, contact details, gender, year of birth, and, if any, diagnosis (autism, fragile X, other – we only specified autism and fragile X as these are at the centre of our work, but people with other diagnosis are also welcome to join the Database). When registering you are also offered the possibility to be contacted through another person (parent, guardian, carer, professional). If you choose to name a contact person, we will store their name, contact details, and relationship to you. We ask you these personal details so that we can send you research participation opportunities that specifically fit your personal profile, thus making sure you are not receiving a large number of less relevant emails.

These personal details are gathered in a password-protected Database on a password-protected University of Edinburgh server, which can only be accessed by an authorised member of the University of Edinburgh staff. The information you provide will be used by the administrator of the PWC Participants Database to send you opportunities of interest to you, as well as an email with all ongoing research participation opportunities, twice a year, in case you missed or in case you were not included in, the other recruitment emails.

You can opt-out of the PWC Participants Database at any time by emailing us at patrick.wild.centre@ed.ac.uk (please write “UNSUBSCRIBE” in the subject of the email for faster processing, and indicate you wish to opt-out of the Participants Database).

 

Note that if you are registered in both the PWC Friends List and the PWC Participants Database, unsubscribing from one will not automatically unsubscribe you from the other. If you wish to leave both the Friends List and the Participants Database, please send us an email at patrick.wild.centre@ed.ac.uk (please write “UNSUBSCRIBE” in the subject of the email for faster processing) explaining you wish to opt-out of both groups.

 


We do not use profiling or automated decision-making. A human decision maker will always be involved before any decision is reached in relation to contacting members of the PWC Friends List or members of the PWC Participants Database.

You can access the University of Edinburgh’s privacy statement here https://www.ed.ac.uk/records-management/notice. You can also find more information about Privacy management at the University of Edinburgh here https://www.ed.ac.uk/about/website/privacy

 

If you have any questions, please contact us on Patrick.Wild.Centre@ed.ac.uk.