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This year 136 families in the UK will be given the devastating news that their son or daughter has Fragile X Syndrome, so they will be developmentally delayed, may have epilepsy and will join the many more children with the equally debilitating diagnosis of Autism.
By reading this statement, you have learned something about Fragile X syndrome and we have stepped closer to our goal of raising awareness in a million people.
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Keep up to date with the current expedition to Everest Base Camp raising awareness for Fragile X and happening right now!