CHANGES study – Behaviour and Physiology in SYNGAP1

Published Feb 2024

Inclusion Criteria: Participants must be between the ages of 2-15 & either 1) have a diagnosis of SYNGAP1-related intellectual disability or 2) have no diagnosed neurodevelopmental conditions. This study is held at the University of Edinburgh, and after first visit, a follow-up visit will be scheduled one year later.


Additional locations in the UK:

If you are ready to participate, follow the link for your preferred date & location:


  1. York: 9-10 March 2024:


  1. Manchester: 20-21 April 2024:


  1. Luton: 22-23 June 2024:


  1. Bristol: 29-30 June 2024:


Or: Forward your interest in participating or your questions to Sydni Weissgold

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