News & Events

New Male Carers’ Group

The Fragile X Society is setting up a new male carer group in the Edinburgh Area. The aim of the

New on-line course aimed at Professionals

  A new e-learning course aimed at raising awareness of the little-known condition Fragile X Syndrome among professionals has been

Novartis AFQ056 for fragile X trials results

The final results of the randomised controlled trials of AFQ056 for fragile X syndrome have been released and unfortunately they

Craft Fair

Join us at the Anne Rowling Regenerative Neurology Clinic on Tuesday 18th March, 5.30 – 7.30 for an event to

Scotsman article about the new Shirley Imaging Suites

Scientists in Scotland have started work using state-of-the-art laser microscopes to help find treatments for autism. Researchers at Edinburgh University

Fragile X Awareness Day Tuesday, 29th October 2013 at 5:30pm

You are cordially invited to the event which marks this year’s Fragile X Syndrome Awareness Day in Edinburgh At the

Fundraising Firewalk – Monday 18th November 2013

Monday 18th November 2013 This November we are hosting the hottest event of the year… After a two hour training

Six Pack Challenge

Go Wild! this summer with our Six Pack Challenge Complete our six different fitness classes over six weeks (from Wednesday

Hearts4X Fundraising Event

Please join us for a fabulous evening of entertainment featuring the Loose Hearts band in aid of the Patrick Wild

The Scottish Fragile X Registry is now open and recruiting volunteers!

Initially we are only recruiting people who live in Lothian but we hope to expand to the rest of Scotland

A New Centre for Brain Development and Repair

A major new initiative in neuroscience between the University of Edinburgh and the Institute of Stem Cell Biology and Regenerative

Papers published in 2012

2012 Acunzo DJ, MacKenzie G and vanRossum M (2012) Systematic biases in early ERP and ERF components as a result

Make a Donation Today!

Heart Donation