Written by members of The Patrick Wild Centre alongside colleagues at Fragile X International this paper gives a fantastic overview of how Fragile X affects people living with FXS and their families. It gives hints, tips, and suggestions about how person-centred care should be provided to people living with FXS, all through the life course.
It emphasises the need for proper guidelines and for a holistic approach for how people with FXS can be supported.
The link to the full paper can be found below
