New paper!

Published Feb 2024

Written by members of The Patrick Wild Centre alongside colleagues at Fragile X International this paper gives a fantastic overview of how Fragile X affects people living with FXS and their families. It gives hints, tips, and suggestions about how person-centred care should be provided to people living with FXS, all through the life course.

It emphasises the need for proper guidelines and for a holistic approach for how people with FXS can be supported. 

The link to the full paper can be found below

A holistic approach to fragile X syndrome integrated guidance for person‐centred care – Johnson – 2024 – Journal of Applied Research in Intellectual Disabilities – Wiley Online Library

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