News & Events

Sir William Darling Memorial Prize

Jess Lonsdale awarded the Sir William Darling Memorial Prize

Dr Lindsay Mizen is delighted to have received funding from the Baily Thomas Charitable Trust to undertake a further study

Harmony Biosciences release findings from the RECONNECT clinical trial

Caregiver Views on Gene Therapy for Fragile X Syndrome overview Background: Recent years have seen multiple clinical trials for medications

The SYNGAP1 gene is located at 6p21.32 on Chromosome 6, making 6.21 (June 21st) a meaningful date for global

Estimation of the prevalence of fragile X syndrome in England from the Clinical Practice Research Datalink

On Friday the 16th of May, we were thrilled to welcome over 50 families and friends of the Centre for

Behavioural difficulties in fragile X syndrome: current pharmacological options and potential future developments

Fragile X Family Day 2025: A Day of Support, Stories, and Science

We are delighted to announce that we will be launching a webinar series this year. Keep an eye on this

Registration is now open! Come join us on the 22nd of March for a day filled with support and information

Study new ways to measure thinking in minimally-speaking children