SYNGAP1 Family Day: 7th October 2023
September 15th, 2023Register now for our SYNGAP1 family day on 7th October 2023. We are very much looking forward to our 3rd SYNGAP1 family day in Edinburgh which is co-organised with SYNGAP1-UK. Families will have the opportunity to meet to meet other families affected by SYNGAP1 and learn from their experiences as well as hear from laboratory and clinical scientists working in the SYNGAP1 field. For those who can bring their affected relative there will also be the opportunity to take part …
FRAXA funding awarded to Patrick Wild Centre members investigating touch processing in Fragile X Syndrome
September 8th, 2023Congratulations to Damien Wright on becoming a FRAXA postdoctoral fellow studying somatosensory processing in people with fragile X syndrome. Sensory sensitivities are increasingly recognised as important causes of anxiety and distress in people with fragile X syndrome, with recent studies highlighting the potential importance of touch sensitivity in particular. In order to develop interventions for these issues, we first need a valid and reliable way to measure sensitivity to touch in people with fragile X. Damien, supported by Patrick Wild …
RECONNECT clinical trial – Recruitment deadline extended
May 3rd, 2023Update: The deadline has been extended until November 2023 The Patrick Wild Centre is currently running the RECONNECT clinical trial for children and adolescents with fragile X syndrome. The link below will take you to a website with more information about the trial and a place to enter your details if you are thinking of participating. Or feel free to just contact us directly at pwcresearch@ed.ac.uk Learn more about a clinical trial evaluating investigational topical cannabidiol (CBD) gel to see …
